Cherishing Moments in Difficult Days

So many reasons I cherish every moment I have; I never know when the next shit day is coming.

Im learning that it's okay to have shit days, to acknowledge when my body needs rest, and to listen to what it is telling me. It's a lesson in self-compassion and understanding that healing isn't linear. These challenging moments remind me of the importance of patience and the power of resilience.

In these times, I focus on small, gentle acts of self-care, like listening to music, practicing yoga, or simply allowing myself the grace to be still. I remind myself that it's perfectly alright to slow down, to pause, and to recharge.

Despite the struggles, I strive to find beauty in the little things—a ice coffe on the beach, gentle walk in nature, lunc with a friend, the birds singing outside my window, or been with my grandson. These moments of mindfulness help ground me, offering a sense of peace and acceptance.

Three of the most important people in my life 

Finding balance and knowing that even on the toughest days, there is hope and the promise of brighter moments ahead. With each rest, I gather strength to face the next day, ready to embrace whatever it may bring.

A typical day resembles the calm before the storm, with signs of brewing symptoms all around.

I could sense the tremors in my hands.

I could feel my balance deteriorating.

I could notice the wobbles becoming more intense

I could feel my vision worsening.

I could feel the pressure intensifying in my head.

The critters at church, also known as my ear.

A leaking ear, with fluid being coughed up and a runny nose.

Welcome to hell

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A Tale of Personal growth and Solo Adventures

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Living with a medical condition is just like the ocean