"Breaking the Silence Challenging Ignorance and Assumptions"
Navigating Life with Invisible Illness
One of my greatest frustrations is ignorance and making assumptions. Three years ago, I was assaulted, an event that my therapist and other professionals have identified as a significant my domestic violence was high this has changed my life forever. Since then, I have fought for 3 years tirelessly with various systems to obtain a diagnosis. This struggle arose from persistent symptoms like constant headaches, blurred vision, tremors, pressure, jaw pain, hearing loss, and weakness on my right side. Over time, my condition worsened, leading to numerous hospital visits. I had to be cleared for a stroke and ruled out for a blood clot in my lung; the tests have seemed endless. I lost the ability to continue my role as a support worker, a job I loved. Driving has become a luxury, and socializing is increasingly challenging.Despite these challenges, I've learned to adapt and find new ways to navigate life. Each day is a testament to resilience and the power of the human spirit. I've discovered that even in the face of adversity, there are opportunities for growth and transformation.
I've embraced the support of a compassionate community and have found solace in sharing my journey with others. Connecting with people who understand my struggles has been invaluable, providing encouragement and empathy when I've needed it most.
One of the greatest lessons I've learned is the importance of self-compassion. It's easy to be hard on ourselves when life doesn't go as planned, but I've realized that treating myself with kindness and understanding is crucial for healing and moving forward.
As I continue on this path, I am determined to focus on the positive aspects of my life. I cherish the simple pleasures and moments of joy, finding beauty in the everyday experiences that might have once gone unnoticed.
Through it all, I've come to understand that while my journey may be difficult, it is also uniquely mine. It has shaped me into the person I am today, and for that, I am grateful. By sharing my story, I hope to inspire others facing similar challenges, reminding them that they are not alone and that there is always hope for a brighter tomorrow.
The trauma essentially triggered a switch in my brain, causing it to malfunction. My body experienced inflammation, while my lymphatic and nervous systems were under stress. Following the concussion, I developed a mild mental brain injury that resulted in particular migraines and a functional neurological disorder.This disorder brought on a host of new challenges, leaving me to navigate an unpredictable landscape of symptoms. Each day became a balancing act, as I learned to manage my fluctuating energy levels and the various ways my body responded to stress. Despite these hurdles, I've come to recognize the importance of patience and self-compassion in my healing journey.
I've embraced managing my condition, with mindfulness practices, gentle physical activity, and yoga. These have become cornerstones in my quest for stability and well-being. Through yoga and meditation, I've discovered a newfound sense of peace and resilience, allowing me to face each day with more confidence.
Among all my conditions, Functional Neurological Disorder has been the most challenging to manage. Some days I feel fine, while other days are a complete struggle. There are times when I shake, moments when my vision is impaired, instances when I can’t think clearly, and days when walking becomes difficult and I have absolutely no control.This is not made up; it's a reality I face every single day. My heart goes out to everyone living with this condition, especially those who encounter ignorance. Before making assumptions, I encourage you to educate yourself and show some compassion.Living with Functional Neurological Disorder (FND) is like being on a rollercoaster with unpredictable twists and turns. It's a journey filled with ups and downs, where each day can present new challenges that require immense strength and resilience. Yet, in the midst of it all, I have found moments of clarity and gratitude that help me persevere.
For those who may not be familiar with FND, it's a condition where the nervous system functions incorrectly, even though the structure of the brain and body appears normal. This can lead to a range of symptoms, from tremors and mobility issues to cognitive difficulties and sensory disturbances. It's a complex disorder that often requires a holistic approach to management.
Education and awareness play a crucial role in combating the misconceptions surrounding this condition. By shedding light on FND and sharing our stories, we can foster a greater understanding and compassion for those living with it. It's about breaking down barriers and building a world where everyone feels seen and supported.
To anyone who finds themselves misunderstood or judged because of their condition, know that you are not alone. Your journey is valid, and there are people who stand with you, ready to support and uplift you. Let's continue to raise awareness and create a more inclusive and empathetic world for all.
Despite the challenges, I strive to find beauty in the everyday moments and celebrate the small victories. It's about embracing life in all its forms and nurturing a sense of hope and resilience that carries me through the toughest days. Here's to continuing this journey with courage and grace, knowing that brighter days lie ahead.